I’ve moved my writing to Substack
MailChimp proved too cumbersome. Substack is, simply, simpler. Here’s the master link. I hope you’ll come find me. Janet’s Dementia Journey: Unexpected, Unplanned, and Unpacked for.
My Interview With Vivian Sisskin
In April of 2024, my longtime friend, Vivian Sisskin interviewed me for her podcast, Open Stutter. https://www.youtube.com/watch?v=YDaL3P_xObM
Finding Ways to Feel Gratitude: Knowing Myself
Once we got the first MCI diagnosis, I knew that Woody would be changing. How quickly, I didn’t know, I just knew it’d come and I needed to prepare. I did what you’d expect: I began to identify and gather … Read More
Finding Ways To Feel Gratitude and Joy In the Midst of This Unexpected Journey: Staying in The Present
Once we got the first MCI diagnosis, I knew that Woody would be changing. How quickly, I didn’t know, I just knew it’d come and I needed to prepare. I did what you’d expect: I began to identify and gather … Read More
Educating Myself: My Five Phases
There are many stages of this dementia journey and different models outlining the progression in “phases” from three (mild, moderate, severe) to four (early, middle, late, and death) and seven (see below). Each of these are geared to the patient … Read More
Educating Myself: The Books
Since my husband’s MCI diagnosis from the Neurology NP nearly two years ago, I’ve downloaded nearly 60 book samples on living with dementia into my kindle and read a dozen or so of them. I read the sample first, buy … Read More
Educating Myself To This Insidious and Still Somewhat Mysterious Disease: The Letter
Early on, it occurred to me that keeping Woody mentally active would be important. We’d made good friends during the years we sang with the hospice choir, so I reached out to them. “Would you come for a short visit?” … Read More
Alzheimer’s Many A Words
I’ve come up with FIVE gerunds that describe how I’m dealing with this journey. (owning my emotions in the moment, surrounding myself in support, educating myself to this insidious and still somewhat mysterious disease, identifying the challenges I face, and … Read More
The dawning of my dementia journey
I promised to be back at the dawn of 2025, didn’t I? It’s April as I write this, long past dawn; it’s more like mid-morning. Here in northern Vermont the snows are melting, the rain is pelting, and the mud … Read More